the brilliantly leaping gazelle

Tag: bells palsy

A couple of weeks ago I visited Moorfields eye hospital, ostensibly to have my eye checked but in reality more to satisfy the concern of my housemate, Old Blue Eyes, who was concerned for my eye health. The cause for this concern was a faint red line that was either a burst blood vessel or something indicative of a more serious problem. Initially skeptical about the whole enterprise, looking back on the results I’m bloody glad I did so.

Now I will admit that everyone has their own experience of the National Health Service but I have to say this experience was outstanding. From the initial check in assessment, cursory eye examination and then being seen by a doctor, took less than two hours. Which in anyone’s book is very good going and a worthwhile investment of one’s time, especially when eye health is concerned. The examination of my eye revealed that there was no major problem but what was really interesting and of use was what followed next.

In the course of outlining the procedure for taping up the eye at night – a lubricant applied to the eye, then taping it shut, then carefully affixing cotton pads to the closed eye to keep it closed before firmly fixing the whole thing in place with plasters – the doctor was mystified. Had I not considered using a moisture chamber? Given that this was the first time anyone had mentioned moisture chambers to me I was both ignorant of what they were and how they might be of use to me.

Given also that I’ve been to Moorfields numerous times since my Bells Palsy diagnosis and repeatedly explained this Heath-Robinson approach to taping the eye shut at night to them, I was astounded. Especially as on one occasion my secondary goal was to outline the whole rigmarole to a doctor, who would then send us a letter setting out the procedure as medically authorised so as we could present to a district nurse. Who as individuals – in their personal lives – may be bastions of common sense, but as a collective –in their working environment -they’re just bast*rds.

Anyway, a moisture chamber is a way of enclosing the eye, so that dry air doesn’t come into contact with the eyeball and thus the eye remains moist. In practice what this means is as I write this I’m now wearing a pair of swimming goggles. Not only do the suction cups on the goggles provide an airtight seal to trap the moisture in the goggles, they also have the benefit of having blue lenses that compliment perfectly any number of my outfits. I’ve also got a pair that not only have blue lenses, but a blue strap. And two with different shades of purple.

This point is of no little concern to me, as anyone who’s read any of my previous posts will no dobt be aware, I pride myself on my colour coordination. Therefore swimming goggles afford one a most excellent opportunity to do so. As with most things a little effort goes a long way. I was mindful of this when I was looking up moisture chambers on the interweb. A company in the U.K made moisture chambers in the form of ordinary blacked out glasses with suction cups on both eyes. Which were as ungainly as any pair of blacked out glasses would be. However the search also revealed that in the United States a manufacturer had made a moisture chamber eye patch that one could wear at night.

This neatly illustrates the difference between the respective healthcare systems in the United States and the United Kingdom. In the United States healthcare provision is patchy at best, based primarily on your ability to pay for care. Whereas in the United Kingdom access to healthcare is free, based solely on need. Granted these are generalizations to make a point, but really, ask yourself, ‘Where would I rather have emergency surgery?’ But it is when one is looking for aids and devices that might assist in the recovery process that it really hits home. In America there seems to be a plethora of inventive products that imaginative solutions to every assistance, whereas in the United Kingdom there is a dearth of them.

However, the fact that incompetent bureaucracy knows no boundaries, was bought home to me – quite literally – when I to found my discharge sheet from my initial visit to hospital where my Bells Palsy had been diagnosed. The diagnosis was made by a specialist from the stroke team. As such she would have been well versed in all aspects of neurological care by the hospital, so it was with no little amazement that I learnt that the hospital was in fact a center of excellence with a specialist neurological unit for the South East of England. That further more one of the consultants had a specific interest in Bells Palsy. My flabber was well and truly gasted! Seemingly no one had seen it worth their while to impart this information to me.

However back at Moorfields, the doctor moved on to discuss possible future options for my eye. Observing that my current treatment regime of lubricating the eye throughout the day was unsustainable for much longer, he suggested that if no significant improvement had been made in three months then an internal eyelid weight would be fitted. An internal eyelid weight is much like the filling in a kebab, if you imagine that the eyelid is the pitta bread and the surgeon cuts the eyelid in the same way that the ‘chef’ slits open a pitta bread. This creates a cavity into which the greasy meat and derisory salad will go. The eyelid weight is the kebab meat! Only its very slim – less than a millimeter thick – and gently curved to the eyelid. Of course naturally my worry is that at the moment when the surgeon applies a scalpel to my eyelid he will have a coughing fit!

Next week..As I’m on holiday, you’ll get my recipe for my Warm Tasty Salad, you lucky people…!

Depression and Bells Palsy? What could possibly go wrong?

I could start by offering a similar warning to the one I offered here namely that “This is about MY personal experience of depression, how it makes ME feel and should not be misconstrued as advocating any course of action by any other person. Sorry about that, but there are some vulnerable people surfing the interweb and one has no idea who might stumble across this when they’re at an especially depressed state,” but since the amount of people subscribing to this is (barely) into double figures – and less than half of them are real people _- by that I mean NOT bloggers selling lifestyle / recipe / self-help nonsense – I don’t think I’ll bother. Not when this blog doesn’t feature high on any Google searches which means the chances of someone stumbling on this by chance are as remote as the creationist myth being anything other than trumpery moonshine.

Of the many things I’ve recounted in my blogs about my Bell’s Palsy, perhaps the most obvious omission is the most relevant. My mental health. Or, to be more exact, the lack thereof. When the villain in the last Bond film ‘Skyfall’ is captured, he recounts how after months of being tortured by the Chinese – and realizing that M had abandoned him – he decided to break open the cyanide capsule hidden in a tooth. Which didn’t quite do the job leading him to angrily point out, “Life clung to me like a disease.”. I know how he feels, because they may well have saved my life after the accident in the strict technical sense, but insofar as the practical day-to-day mechanics of life, what I’m left with is a cruel imitation of one. All I amount to now is loose change.

The Bell’s Palsy only worsens this, because not only does it highlight my own lack of fine motor skills – the ones that help your fingers distinguish between shaving your face or conducting an orchestra with the requisite precision needed for both – also by doing so, for an added confidence eroder, amplified my dependence on other people. The fact they do so selflessly and with good humour only makes it worse. At the hospital they gave me a prescription for eye cream; the fact that due to my lack of fine motor skills I couldn’t apply it was neither here nor there. Their records would show I’d been given a prescription for cream, told how to apply it and so they were in the clear.

However, as I alluded to in a previous blog, a hospital is perhaps the only place where less than bad news is interpreted as good news. My symptoms could easily been indicative of a stroke, so further tests could until conclusive proof to rule out that possibility, and until the results of a CT scan were known, I was outwardly as calm as one could be, but inwardly thinking, ‘Fine. If it is a stroke, we know exactly what we’ll do. We’ll enact the plan whilst I have sufficient function to do so’. The plan, it need hardly be said, is not a plan one communicates. Suicide is, when you take away all the emotion and break it down to its constituent parts, an achievable goal that just requires some thought. Mine has been refined such because I know it’s both viable and foolproof, I don’t dwell on it.

Meanwhile, back in hospital I just waited as thoughts – none of them cheerful – multiplied in my head like an aggressive virus. Not that my head is a good place to be at the best of times – and that certainly wasn’t the best of times. Winston Churchill famously called his depression ’The Black Dog’ and mine is more like Battersea Dogs Home. It has been with me ever since I woke up from the coma. Darwin, how I wish I hadn’t. But wake I did, and even though my waking thought some mornings is ‘Why did I bother waking up’ nonetheless I have a ‘functioning’ depression – one that gets me out of bed, partaking in my rehab (not the Amy Winehouse kind) and subjecting this on you. – rather than a’ debilitating’ depression where you can’t see the point of anything resulting in you not doing anything. Nevertheless, it is always there; sometimes more pernicious than others, but a constant unwelcome companion. And the irony is that due to the nature of my brain injury, most anti-depressant drugs are contra-indicated. Which in itself is depressing!

I don’t often write about my dark thoughts not just because it does me no good to do so, but also more importantly there are far more interesting things to occupy my mind. And therein lies the problem. To look at, I seem relatively normal. It’s only when I try to speak, or stand or do anything that requires smooth controlled muscle co-ordination, that one realises that the relative in question is a distant cousin I’ve never met. Never has the phrase ‘The mind is willing, but the flesh is weak’, been more apposite. My mind is as sharp as it ever was, but now the means of transporting it from A to B have been blunted.

When I was young – and not so young – when people asked me what I wanted to be when I grew up, or what my ambition was, my reply was always the same. “Happy”. And this so isn’t happy. When I get in these moods, I think I should really take a long walk off a short pier. It all depends on the length of the pier, as unaided my walking is haphazard. And that in itself alarms me, writing about it so calmly. Worryingly calmly in fact. I know I shouldn’t. If anything, that exemplifies just how fubar the situation has become.
I endured childhood for this?

My childhood was a fairy tale. A Grimm one.

As I wrote earlier, whilst the depression has been with me since I woke up from the coma – and I have only a memory, of being happy, I have nonetheless learned how to live with it.

Despite, that is, not enjoying living.

So, in order to lighten the mood, a little musical treat for you, there being no similarities whatsoever between The Cures ‘Close to Me’ and George Michaels ‘Faith’.

Go on, hear for yourself.

Next time..Sports ‘news’ might well be an oxymoron but one that provides an easy to understand alternative to proper news….